Florida woman Edwarda O'Bara dies after 42 years in coma

Miami Herald file

Kaye O'Bara kisses her daughter Edwarda on her birthday March 20, 2005. Kaye O'Bara took care of Edwarda until her own death in 2008.

A woman who lived in a coma for 42 years, meticulously cared for by her family, died Wednesday in her home in Miami Gardens, Fla., the Miami Herald reported.

Edwarda O’Bara was a 16-year-old high school student in 1970 when she became sick from her diabetes medication and slipped into a diabetic coma.

According to the Herald, just before she lost consciousness, Edwarda asked her mother, Kaye O’Bara, to never leave her side, and her family never did.


Edwarda’s father, Joe O’Bara, and Kaye took care of their daughter — reading to her, playing her music, making sure she was turned every two hours, bathed, given insulin and given nourishment through a feeding tube — until their deaths in 1976 and 2008, respectively. After that, Edwarda’s sister Colleen O’Bara took over.

Miami Herald File

Kaye O'Bara talks with her daughter, Edwarda, in March, 1998. At that point, Edwarda had been in a coma for 29 years. Edwarda died Wednesday, outliving her mother by four years.

The family’s story inspired the 2001 book, "A Promise Is A Promise: An Almost Unbelievable Story of a Mother’s Unconditional Love and What It Can Teach Us" and a song called "My Blessed Child," and it prompted people from around the world to travel to her Florida home.

"She taught me so much, and I’m talking about now, after she was in the coma," Colleen O’Bara told the Herald. "She taught me so much about unconditional love that I couldn’t say I had it before. She taught me about patience that I didn’t have before."

In an announcement of Edwarda's death posted Thursday on a website dedicated to her, Colleen O'Bara wrote: "Yesterday while taking care of Edwarda I noticed her looking directly at me and gave me the biggest smile I had ever seen. She then closed her eyes and joined my Mom in Heaven."

Edwarda O’Bara was 59. A memorial is scheduled for Tuesday.

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I have a 16yr old. That story blows me away! It gives me hope in strange sort of way. Not sure how though.

    Reply#57 - Fri Nov 23, 2012 11:21 PM EST

    OMG! What a sacrifice this family made all those years with hope still in their hearts until the very end. Story lines like this exist only so often, and when they surface it pulls at the heart strings that the meaning of love, strong faith and a greater purpose than self, is still relevant in this ever so cruel world. Peace!

      Reply#58 - Fri Nov 23, 2012 11:28 PM EST

      As a parent myself I don't know what I would do...coma's are an interesting phenomena. I am glad I have not had to make such hard decision and I hope I never have to. I admire the strength and dedication this family had to their daughter and it was their choice to choose the path they did...whether right or wrong it was their choice and as I can see their daughter lived only because of their extraordinary care. I am sure that most of us do not have that kind of strength or dedication...I know I do not have this kind of endurance. I am pretty sure a good percentage of the people that have commented on the O'Bara's decision have never seen a person in a coma and when a person goes into a coma and your Dr. tells you that there is still brain activity and a possibility that they may come out of the coma with about an 80% chance that everything will be normal...well it's just that...a very HARD decision. Two of my close friends have been in coma's one at 19 from a car accident and he came out of the coma after a month and had to re-learn just about everything...he is fine now but not good at short term memory. My other friend at 42 had a heart attack died twice, revived was in a coma for four months came out of it to some extent but was never the same person prior to the coma...she lived for eight years, with much care from her family and her family finally made the decision to let her go. My friend of 40 years was locked in her body...she could talk but with great effort, she could not walk or care for herself and she understood everything...her eyes told her story each and everytime I visited her. In the end her family took the feeding tube away and it was Not an easy decision after 8 yrs but it was the right decision for them. My friend has been gone for over a year now and when her mother had to make that decision to "pull the plug" or see if she would come out of the coma...she called me and asked me and I told her to pull the plug but my answer was as a friend not a daughter. Tough decision anyway you look at it...Blessings on the O'Bara Family.

      • 1 vote
      Reply#59 - Fri Nov 23, 2012 11:30 PM EST

      While I respect their decision, I completely disagree with it. You kept your daughter alive for 42 years in a coma. That's crazy on numerous levels. It does have to be a Guinness World record though!

        Reply#60 - Fri Nov 23, 2012 11:33 PM EST

        And may flights of Angels sing her to her final rest.

          Reply#61 - Fri Nov 23, 2012 11:36 PM EST

          This is the most appalling thing I've ever read. This poor woman was selfishly withheld from the freedom of passing, not out of love or compassion, but by dysfunctional and pathologically controlling parents. Love sometimes means letting go. It's interesting how when science barbarically keeps someone alive it's the "moral" thing to do, or when science takes a life through capital punishment it is considered "justice." Wake up people. Keeping someone constrained to a bed, not knowing the Hell they may have been experiencing in their mind is inhumanity at it's worst. How demented for everyone to be acting like this is a story of inspiration. It's ghoulish.

          • 1 vote
          Reply#62 - Fri Nov 23, 2012 11:38 PM EST

          There is noting like a Mother's love, it's cruel at times to hope for so long

            Reply#63 - Fri Nov 23, 2012 11:41 PM EST

            If I woke up after a 42-year coma, I'd never speak to my parents again.

            • 2 votes
            Reply#64 - Fri Nov 23, 2012 11:47 PM EST

            It is easy to see how this developed over time...at sixteen no one in Edwarda's family could bear to see her feeding tube removed. She was still young and pretty. There was still some hope. Time passed and routines set in. Years turned into decades. Edwarda became middle aged, but no one could think of turning off the machine after so many years. I am sure the family never thought it would take so many years for Edwarda to die. Perhaps they would have stopped the tube early on if they could have looked into a crystal ball. Most people don't make decisions in such situations; they wait for decisions to be made for them by fate. It would be so hard to tell someone to turn the tube off if it is your child at the other end. I hope none of us ever have to face such a situation.

            • 3 votes
            Reply#65 - Sat Nov 24, 2012 12:02 AM EST

            You really have great insight into what was happening. Thats very well said.

            • 1 vote
            #65.1 - Sat Nov 24, 2012 10:08 AM EST

            Absolutely, you hit the nailon the head. I'm sure after a while, the ritual of her care itself took on a life on its own. Every little gesture or movement meant something, including Edwarda's last "smile". Reading all the posts here makes me realize that the article never mentions EEG results, showing brain patterns that would give some indication of the depth of her coma. My beloved sister was in a coma after a brief illness, Her ventilator was removed after the second flat EEG, which indicated complete brain death. Giving consent for the vent removal still felt like being stabbed in the heart.

              #65.2 - Sat Nov 24, 2012 10:46 AM EST
              Reply

              Dumbest thing I've ever heard of keeping someone half ass alive for 42 years.

                Reply#66 - Sat Nov 24, 2012 12:07 AM EST

                Hey warren,isn't so dumb when those $1200-$1400 checks are deposited every month,and all the tax right offs.And i would bet all her azz wipings were payed for by the taxpayers also.Im not mad,im just saying.At least there white people,that are american citizens this time.

                  #66.1 - Sat Nov 24, 2012 1:18 AM EST
                  Reply

                  I do not fault this Mother in any way whatsoever. However, my own mother would have released me 40+ years ago, as would have been my personal wishes. I would NEVER want my family to tend to me and give up the best years of their lives. Move on, live on, we will see one another again.

                  • 1 vote
                  Reply#67 - Sat Nov 24, 2012 12:23 AM EST

                  A family decision regardless of how we feel. They did what they felt was right for the woman and I have no problem with that. I hope I never have to be in the same situation. God bless them.

                  • 1 vote
                  Reply#68 - Sat Nov 24, 2012 12:46 AM EST

                  Hell,why the hell not.They collected her social sercurity for 42 years,they got to get a handycap placard for there rear view mirror,and they got in front of the line at amusement parks.

                    Reply#69 - Sat Nov 24, 2012 1:01 AM EST

                    How did a story about a mother's enduring love become the basis for such an ugly conversation about this woman's family?

                    Rest in peace, Edwarda, you are home now.

                    • 1 vote
                    Reply#70 - Sat Nov 24, 2012 1:04 AM EST

                    If Edwarda knew the physical, emotional, and financial toll it took on her mother and family, I don't think she would have whispered those words to her mother to never leave her side. I don't know what I would do exactly in that situation but I would think that my child would not want to put that amount of burden on the family.

                      Reply#71 - Sat Nov 24, 2012 1:11 AM EST

                      At sixteen, I think we are probably a little more scared of what is waiting for us when we die. I think it is very natural for a sick child to ask not to be left alone. I don't know how any parent could not honor that request. I also don't know how much it took for this family to do so.

                      • 1 vote
                      #71.1 - Sat Nov 24, 2012 10:11 AM EST
                      Reply

                      It incredible story, I have say to the mother and to her family that stood next with the patient for 42 years....can't imagine a word that describe them, but greatest human being and heroes to the daughter ! It take deep and solid compassion live with someone that is ill for that long. God bless her daughter soul and her mother and family !

                        Reply#72 - Sat Nov 24, 2012 1:16 AM EST

                        This was a touching story and showed the true of love of a mother. Rest in the Glory of God, Edwarda.

                          Reply#73 - Sat Nov 24, 2012 1:17 AM EST

                          The situation is what it is. The family did what they felt was right and unless there is a "living will", the decision was theirs and theirs alone.

                          Not only am I very vocal about my wishes if something like this were to happen to me, but specific instructions are provided in my living will that spell out exactly what I want to happen to my comatose body.

                          Dispatch me as quickly and humanely as possible without breaking the law or jeopardizing your own freedom, and then cremate my remains.

                          • 2 votes
                          Reply#74 - Sat Nov 24, 2012 1:35 AM EST

                          Everyone should have a Living Will. It tells how you want to die if you are in an irreversible coma or in a vegetative state with no hope of recovery as this woman was.

                          Edwarda's family took good and loving care of her, that was their wish. However, Edwarda's wish might have been to leave this world naturally and not lie in bed with a feeding tube inserted into her abdomin while liquid nutrients flowed into her body daily for 40 years. What a horrible way to live.

                          • 1 vote
                          Reply#75 - Sat Nov 24, 2012 1:38 AM EST

                          Edwarda died when she was 16 years old. It's sad her family tortured her for the next 42 years, selfish. Tragic outcome. May she rest in peace .... finally.

                          • 2 votes
                          Reply#76 - Sat Nov 24, 2012 1:42 AM EST

                          Dear Mom and Dad ... If I am ever in a similar situation, I would prefer an overdose of morphine. Love you guys. -- Bryan

                          • 4 votes
                          Reply#77 - Sat Nov 24, 2012 1:44 AM EST

                          She was not in a coma, she was in a persistent vegetative state. And 42 years is likely to be the longest vegetative state on record. Personally, I can't see the point of keeping her alive all that time, but it isn't my place to make judgements. After all, I didn't have to do it. But this woman was not tortured. She was cared for in the most gentle and loving way. Her familly deserves your respect, not your scorn.

                          • 1 vote
                          Reply#78 - Sat Nov 24, 2012 1:58 AM EST

                          Thats incredible! Too bad all these other jerks don't know the true meaning of LOVE!

                            Reply#79 - Sat Nov 24, 2012 2:07 AM EST

                            We all have our opinions but the truth is NO ONE really KNOWS how they will behave in a situation like this until they are in it. And for that reason alone....let's stop judging.

                              Reply#80 - Sat Nov 24, 2012 2:11 AM EST

                              It is amazing that someone has lived for over forty years in a coma and it is commendable what her family has done for her.

                              I have a living will and I have specifically stated that if I am in a vegetative state, I should be allowed to die. I never want to be a burden (financial, physical, mental, emotionl) to my family. I don't ever want my family to feel guilty about doing what's right for me.

                              Bottom line, everyone is entitled to decide how they will be treated when they cannot take care of themselves.

                                Reply#81 - Sat Nov 24, 2012 2:12 AM EST

                                This is a very good reminder to everybody that YOU need to have YOUR wishes in writing. Save your family and loved ones the agony of making these decisions for you by setting up advanced health care directives. My parents gave us kids a binder a few years back, and when Dad got sick we "went by the book".

                                • 1 vote
                                #81.1 - Sat Nov 24, 2012 8:32 AM EST
                                Reply
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